We finally have a referral to a pediatric gastro-interologist. At this point, the visit will be to confirm the changes we have made to her meds and verify no more changes are needed. Hopefully, this appointment will be soon. If changes happen, it will be a few weeks before surgery.
Finally, today, I have heard about a third child that has had the palate repair, by the same tam we are seeing, and has had holes open in the palate. This is not uncommon. And either the holes close on their own, or more surgery is required. Please pray for these little babies, that the parents will keep the faith, stay strong for their children, that the holes will close and God will comfort these families.